Testimonials
|
Below are
some of the anecdotal testimonies that have come in through our
nonprofit group, the Cherab Foundation, about NutriiVeda...this
isn't all of them and you may wonder "where are the
negative"?
There appears to be little if any, at this point, which is both
fascinating and exciting. To us the following clearly shows the
theraputic effect of nutriiVeda on
conditions such as autism, apraxia,
speech delays and impairments, Traumatic Brain Injury (TBI),
global delays and seizure disorders,
and the importance of this being clinically researched and
validated.
If anyone wants to speak to any of
the parents or professionals in the following please email Lisa
Geng, lisa@cherab.org We are
also working on a survey which we hope will answer more questions.
If you have your own testimony you
would like to add to this page please email us at
testimonials@pursuitofresearch.org |
|
|
NV what a surprise!!!
I was told about it back in January and of course I was
thinking it was like a million other products out there that
parents with special needs children try. However, being
skeptical I did order it and started Matthew (9yrs) on it once a
day (2 scoops). Shortly after he started it I noticed very
slight differences. He seemed to have a healthy look or glow
to him; his temper seemed to have leveled off instead of extreme
highs and lows. Matthew seemed to be grasping or
understanding language a bit more too. The most drastic of
all the changes is that as of today Matthew remains seizure free!!
Matthew has been having uncontrolled seizures for three years now
despite whatever medications we have tried. He has gone
through many types of testing procedures and we were on the road
to have a surgery consult to remove the portion of his right
temporal lobe where his seizures were occurring. Today
Matthew is drinking NV twice a day (4 scoops) and is seizure free
going on 15 weeks! We have dropped his seizure medications
twice now and still remain seizure free. I remain optimistic
that when we hit the six months marker Matt’s neurologist will
help us to slowly remove all seizure medications. I am in
awe of Nutriiveda and what it has done for our family.
Alyssa
|
|
Swimming and apraxia? NV Update too
I would like to give an update on our 10 year old daughter who has
been on NV for about 2-1/2 months. I previously reported that
after starting NV, she had a great surge academically, but as
Lisa has said the surges continue. She has had a problem wetting
the bed at night. In fact, sometimes several times a night. She
never had a night without wetting the bed. About 3 weeks after
staring the NV, she quit wetting the bed. This has been so good
for her. She was afraid to spend the night with her friends.
because she knew what would happen. Now, there are no more
accidents. Also, I had a big surprise when I took her to swimming
lessons Monday.. She has not been able to swim even though she
has had swimming lessons in the past. I figured that she would be
put back with the smaller children to try again. When they tested
her for swimming, they asked her if she could swim. She said no,
so they said for her to show them what she could do. You won't
believe it, but she could swim. I couldn't believe my eyes. She
even surprised herself. Of course she still needs her lessons,
but her coordination is now working and she is breathing and
staying above water. She hasn't been able to ride her bike
without training wheels and in fact has quit riding it all
together because she feels too big for training wheels. Now, she
might even be able to ride the bike. We will try that next. What
wonderful things are in store for our children! Again, THANK YOU
LISA GENG for caring about all of our children. Teri
|
|
Levi's Breakthrough
I just thought it was time to share what we have seen in the last
3 weeks since starting our 4 1/2 year old son Levi on NutriiVeda.
Levi is a sweet little boy who is diagnosed with high functioning
autism and severe oral and verbal apraxia (also a milder limb
apraxia). We have tried numerous supplements, protocols, and diets
on our biomedical journey. Some gave him a little boost and then
he would plateau. Other things we tried had no effect or made him
worse in some way. I decided to try NutriiVeda after stumbling
across the web site while looking for apraxia therapies. I had
read Lisa's book more than a year before and trusted her opinions.
We started Levi out at one scoop for the first week and saw him
perk up and be more vocal. He had a few episodes of stomach cramps
that first week and I mistakenly didn't adjust his food intake and
overstuffed him a few times. Week 2 we took him to 2 rounded
scoops. That is when his speech explosion began. Before NutriiVeda
Levi could point to each letter of the alphabet and say the sound
of most of them. That 2nd week he suddenly started to point to the
letters and saying their letter names. As the week progressed his
letter names got even clearer (he is still discovering those
tongue muscles he had never used before). By Saturday He was at
the fridge where we have magnetic letters spelling out simple
words. He stood there and read D-O-G, dog and D-U-C-K, duck. He
read the words out loud. He has never been capable of sequencing
sounds before now. In the 3rd week we have seen no plateau in
Levi's breakthrough. He began counting to 10 as best as he could
and now is counting to 20 all day long. He can say the words on
his flashcards like baby, car, bear, cat, fish, and more. He is
even making animal sounds for the first time ever. Yesterday we
took the kids to a birthday party at a bounce place. This is
usually torture for Levi as he hates the noise and refuses to
touch the inflatable's. This time the studied them for a while and
with no prompting got into one and began to bounce away with a
huge smile on his face. We are so excited to see this miracle for
him. We knew he was smart, but he just had it all trapped inside
of himself. We can't wait to see what the next month brings. He is
making such leaps in his development every day he has put us over
the moon.
Thanks Lisa for all the encouragement,
Ginny Taylor
|
|
|
Improved grades and focus
I must be honest and say that I was cautious in
purchasing the NutriiVeda for my daughter, because the testimonies
sounded almost too good to be true. Now, I am happy to be able to
add my testimony to the growing list of parents and say that it
has been an answer to prayer. We adopted our daughter from Ukraine
when she was 2 years old. She is now 10 years old and after many
years of therapy, she has been able to do well in school, but
can't remember the material we have studied once a test is over.
She has struggled and we have spent most days going over and over
the same material just to keep up. Up until she started
taking the NutriiVeda, we studied continuously. She just couldn't
grasp what I would tell her and she was unable to understand the
"why" questions or infer what a passage was saying. Her teacher
even commented that even though she made good grades, it would be
very difficult for her in the 4th grade. Well, that has all
changed now. The week before we started the NutriiVeda, the class
started doing fourth grade reading to prepare for the fourth
grade. She made a 48, 56, and 66 on her reading grades. Instantly,
after starting the NutriiVeda, her grades changed to 100's and she
"understood" what she was reading. She now has an "A" in reading.
In fact, without the excessive studying, her lowest grade in all
subjects this past 2 weeks has been a 94. Another great
improvement has been in her speech. She didn't start putting words
together until she was almost 5 years old. She put sentences
together when she was 7 years old. She continues to take speech
therapy, but has had a problem with syntax. I can tell without a
doubt that her speech has improved with the NutriiVeda.
With so many positive things to report, I hesitate to even
mention that it did seem to cause her to be hyper and jumpy the
first week. We didn't give up using the NutriiVeda and now her
disposition is back to normal.. She will now even admit that her
mind feels sharper and last night we only had to study for her
history test 30 minutes rather than days. This morning, I went
over a few questions for history and I could tell that she
remembered everything we had studied and it covered 40 pages. I am
normally cautious when I read reports such as mine, but I would
like to encourage parents to just give this a chance. This is the
first time I have ever replied on a website. Please forgive my
wordiness, but I am just so excited. It is like all the hard work
our daughter has done over the years is now coming together in a
wonderful way! THANK YOU LISA GENG and MR. BILL
FARLEY! Please keep up the good work!
Teri
|
|
|
Tanner's Discovery
I had to cut Tanner’s NutriiVeda
back substantially in fear of running out prior to getting more
in. He was upset as well saying to me “Mommy why did you have to
tell everyone about it?!” He thought it was because of me that
this huge company had a backorder!
But something interesting happened; about 4
days into the greatly reduced dosage Tanner’s speech regressed
back. I asked him what was going on with his speech and he
stuttered “I don’t know I’m just all bumpy again.” The only thing
I could think of was the
NutriiVeda.
The next day I gave him once again a full dosage and sure enough
his speech was better. In addition to weight loss and speech
improvements in the weeks that followed we’ve noticed the
following side benefits which are all out of character for Tanner
prior: waking up each morning prior to his alarm, greater
interest in reading and sharing the books he is reading (in
detail), reading a chapter book in two days, sudden ability to
independently blink one eye at a time, being regular daily.
I spoke with the head of Tanner’s school who confirmed that at
school they too are noticing a changed student all of a sudden.
I’m told about how he is walking the halls with his head in a book
reading. That after lunch prior to
NutriiVeda
Tanner would seem “wiped out” and that now he’s “alert” with
“improved speech” and “participating more in class”.
Lisa Geng
Founder, President
Cherab Foundation
Co-Author, The Late Talker [St Martin's Press]
|
|
Joe's 3 weeks on Nutriiveda
3 weeks tomorrow on Nutriiveda. 2 scoops (1
scoop twice a day) Drinks in 8 oz of milk.
Changing pitch of talk If he asks something,
he will ask in a normal tone of voice, if we say no, he will
'growl' talk (for lack of a better word) then he'll talk in a high
pitch for the next sentence. This is again something that he has
never done. He isn't monotone, just doesn't do this kind of
'silly-type' talk.
He discovered static electricity today and
was wildly amused. I got zapped quite a few times on my neck after
he figured out that rubbing his slippers on the carpet made this
zap, of course he was
giggling and laughing about it.
Eye contact is GREAT
Pointing to items and trying to say every
word adding the right amount of syllables has increased since last
week. Usually he would point or say something, but he is doing
them together. something completely new.
His fine motor skills have kept improving.
His handwriting which has taken him in the past about a half an
hour to complete, now takes 5 minutes and he brings it to me and
smiles and shows me what he's done.
We went to the Pinewood Derby this past
weekend and saw a person that always tries to talk to him, but
he'd only say something if I said to, and he was trying to talk to
her this time. I hadn't told her about the Nutriiveda and she
volunteered to me how much more social and responsive he is than
the
last time she saw him (1 month ago-ish)
Even my husband, skeptic extraordinaire,
said today (which is why I'm writing this today) Joe seems so much
more 'alert' and responding much better than he has in the past.
He added that it might be a coincidence. LOL. but he didn't
think so. Lisa, I knew you would appreciate that!”
Cassandra
|
|
|
|
|
One Month Update - Nutriiveda
What a Winter it has been!
We've been super buried with snow here in
Columbus, Ohio since February began.
I'm talking 25 inches of snow.
I've been reading all the emails from the
group, but because of the snow (and now a major roof problem) I've
been working a lot of hours, so I haven't had much of a chance to
respond.
Here's how Cooper is doing....
He started Nutriiveda back in January, and
has now been on it for one month.
We've increased his dosage from one scoop to
almost 2 a day. I was able to do so because I've found so many
ways to include it in his diet. We're still mostly mixing it with
milk, but I've also been making him a milkshake every day before
he goes to his afternoon preschool class. It's a typical chocolate
milkshake with ice cream, milk, a small
amount of chocolate syrup and one scoop of powder. He LOVES it and
I must say, it tastes pretty darn good.
The gains. Oh the gains.
I'm really happy with the amazing progress.
Cooper's progress has been HUGE across the
board.
His main SLP is not aware that we have been
trying Nutriiveda. When I took Cooper to speech 2 weeks ago, she
happily told me that she is seeing "fewer signs of classic
apraxia." She now says his issues more resemble a phonological
processing disorder - which is apparently a lot less severe than
apraxia. She has always described Cooper as having classic apraxia
- since she first started treating him when he was barely
3-years-old.
Of
course, I love that Coop's articulation is improving, but the
difference I'm most excited about is Cooper's new word usage. The
things that are popping out of his mouth without him even thinking
about...
Tonight, for instance, Cooper and I were
having a conversation about recycling. His Dad walked by and
jokingly said "I think we should recycle all the little boys in
this house." And without missing a beat, Cooper replied "No Daddy.
That would hurt! I can't go in the garbage truck!"
That's just one of dozens of examples of
sentences that have flowed from his mouth without him thinking
about it so much. He just seems to be thinking quicker on his
feet.
Other areas of improvement have been fine
motor, which was the area where we saw the fastest improvement
once we started Nutriiveda.
Cooper has also grown! I'm not sure how that
plays into all this...but I did have a Dad who follows DAN
protocol for his child tell me that sometimes when things get
straightened out metabolically, you'll see a growth spurt. And
Cooper has shot up about a half and inch.
All good things!
We are so excited!
Gretchen
|
|
|
Why is NutriiVeda working?
Read more... |
|
Liam discovers his inner Brittish
We're seeing incredible gains with Liam. Took him to his DAN doc
on Monday and she not only approved using NV (after verifying with
me that the botanicals weren't tainted in any way and the whey was
casein-free), but agreed with taking Liam off of the multivitamin
(Vitaspectrum) she had put him on, adding only an extra Folate +
B12 supplement and zinc, since blood work showed he is low in
these things. She remarked on how much healthier he looks - no
longer has translucent skin, lots of color in his face. Liam has
also grown 1 1/2 inches and gained 3 lbs. He seems happier, and no
longer begs to stay home from preschool. Still more attentive and
engaged. Asking WHAT questions (had never done before) and
speaking in more complex sentences. He is even imitating the
British accent the Pig family has on Peppa Pig! too cute! His
imaginative play has increased, including - and this was a big one
we thought - bonding with one of his stuffed animals and actually
naming it. He has never cared about stuffed animals before - ever.
He has carried this one around with him now for 3 days and sleeps
holding onto it. He puts it in his wagon and wheels it around the
house, and it plays games and watches DVDs with him, too. We are
thrilled! He is sleeping deeper/longer/better. His appetite, which
has always been good, is even better. We are so very pleased!
As for me - I've lost about 15 lbs., my energy level is great, I'm
sleeping better, and my head is much clearer - not sure exactly
how to describe what has happened, but I've felt so foggy for so
many years that I've not even been able to recall the words to
songs that I hear over and over. Maybe processing speed of some
sort? At any rate, that has resolved, too.
I wish I understood exactly what it is in NV that is helping my
son and me so very much, but whatever it is its making me feel
better than I have in years, and it's clearly making a big
difference for our son, which everyone has noticed and remarked
on!
Dianne
|
|
Client Updates
Hi all,
I am an SLP in private practice, Help Me Speak, LLC, in
Marriottsville, MD. I have several clients with either apraxia
&/or autism who have started using NV. Here are some changes we
have noted:
1. Client-M.; 6-6 yrs; male; global apraxia & HI w/fine motor,
sensory challenges too; picky eater (huge gains here prior to NV);
he has only been taking 1 scoop/day in choc pudding BUT as his mom
and I discussed today, we are seeing subtle changes!! Fine
motor-he was interested (not before!) in
writing his name by connecting the dots---never done that before
per his mom; more willing to try school work (before did not want
to practice much); multitasking-today during play, he showed a
sense of humor while using his words; many more attempts to
imitate words in isolation and in combination.
2. Client-M; 9yrs; male; dyspraxia and ASD; speech-language:
before he needed cues and reminders to use full sentences; now, he
is putting many more words together spontaneously!!; many more
comments than before.
3. Client-J; ASD; dyspraxia; mostly nonverbal; only on it for 2
wks w/many more attempts at sentences than previously!!
4. Client-E.; 3yrs; many more attempts at a variety of sounds than
he had previously; at first, had difficulty focusing, but that has
resolved after a few days and now is attending during sessions w/o
difficulty; new sounds--/n, k, g/ which means that his tongue is
elevating more at the front and back of his mouth, also means that
he is dissociating (separating) his tongue from his jaw; WOW!
Even if your child "seems" to make small changes---behavior, a few
new sounds, etc., the underlying skills required to make those
changes are many more than you would think!
Warmest wishes,
Barbara
Barbara A. Taylor, M.S., CCC-SLP
Executive Director/ Help Me Speak, LLC
http://www.helpmespeak.com
(o) 410-442-9791 (f) 410-442-9783
2500 Wallington Way; Suite 103
Marriottsville, MD 21104 |
|
Brett on Nutriiveda
Hi everyone,
I thought I would post our experience on Nutriveda. My son, Brett,
is 11 years old, diagnosed with apraxia at age 2, along with
global dyspraxia and ADHD. He is in regular ed 5th grade, with RSP
support in language arts and math. He currently receives speech
therapy 2x/week, OT 2x/week, and vision therapy 2x/week. He's also
very active in sports, including horseback riding, all of which
have helped his gross motor skills immensely. His speech is by no
means normal. Still many articulation problems, and his prosidy is
odd. Many fine motor problems as well, and continues to struggle
with handwriting, although he's a pretty good typist.
At any rate, we started Nutriveda 3 weeks ago…
Gross motor has improved noticeably since starting. He just seems
stronger, able to throw balls harder and farther, better motor
planning, etc. Speech has definitely been better. I wouldn't say
articulation or clarity is changed dramatically, but maybe a bit.
The biggest change I have seen is in the complexity of his
language. For example, after only 2 days on Nutriveda he was
taking a shower, and I told him he needed to be done. Instead of
saying, "In a minute" or something like that, he said, "Mommy,
please allow me to enjoy the warmth a bit longer." Huh??? Did he
turn into an 18th century British gentleman on this stuff? :) A
couple of days ago he was playing a game on his Nintendo DSi, and
was explaining the game. A very long explanation, which wasn't
unusual except I could understand him better. Then he said, "I
didn't want to try that mode, because that would make the game
much more chaotic." Now, he does have a large vocabulary, but
doesn't typically use words like that in speech. A couple days
before that, he heard the name Stephanie on the radio. He would
normally say something like, "Stephanie in my class" to let me
know there's someone by that name in his class. This time he said,
"Oh, Stephanie, just like the Stephanie that is in my class." Much
more complex, with complete thoughts. His speech is also more
mature. Hard to explain. Maybe something in the tone of his voice,
or the speed of his speech, or maybe it's the more complex
language, but he definitely sounds more like a typical 11 year old
boy than he used to. So I have noticed some very positive
improvements since we started Nutriveda….
Thanks for listening!
Mary |
|
Another "awesome" day at school yesterday, Day 38!
Note said Josh really worked hard and did a lot of the
recycling stuff. ...I think the NV is working on Josh's attention
level - last night after dinner he sat at the dining room table
and "wrote" and drew in his spiral notebooks for about 1 1/2 hours
and we played cards just about until bedtime. He fell asleep on
the couch (was going to watch a Blues Clues and fell asleep during
it!) and went upstairs to bed without any problems.
http://budsnvblog.blogspot.com/ |
|
|
|
Nutriveda Before/After Video
About 1 week ago I posted the following note about my son's 2 wk
experience with Nutriveda and promised to post before/after
footage. I can't figure out how to get the footage onto BigTent or
apraxianet, so I've added it to my personal family blog and wanted
to let you all know in case you'd like to check it out.
apraxiastory.wordpress.com - video was posted Feb 23,
2010 in case you need to go to archives (eventually).
The first post was taken Jan 25, the day before we started
Nutriveda. The 2nd post was taken about 2.5 wks later. I'm not
sure you can see drastic results in his articulation, but per my
prior post, we've seen wonderful results all around - mostly in
verbal complexity and temperament. We think at the least the NV
has allowed Ryan to feel better. Considering he's sleeping through
the night better, not constipated any more (1st time in a year!),
able to convey more complex thoughts and itching less (no more
eczema!) I'd be in a better mood too!
Sharon
------------------
Original post sent on 2/17/2010
Just finishing up wk 2 of Nutriveda and have good things to
report. Here are the details on my son and our experience thus
far.
ABOUT RYAN:
34 mos old; diagnosed w/CAS at 24 mos. He's on 2 tsp/day of NN
3,6,9 since diagnosis and we've seen very positive effects from
using it. Most recently, we had an OT eval and were told there may
be mild issues with decreased oral motor awareness & tactile
discrimination, vestibular & proprioceptive processing as well as
praxis w/unfamiliar motor tasks - whatever all that means (we're
still learning about the Sensory Processing components of this -
he seems just old enough now to pick up on these things...ugh!).
EXPERIENCE
w/NUTRIVEDA:
Dpsage for Ryan is 1 scoop (8-9 level teaspoons). The first 4 days
he took 3-4 tsp/day. During that time, he was nothing short of
AWFUL. He was whiney, crying and just plain defiant no matter what
the situation. Anything would set him off and we saw no
improvements whatsoever. If anything we thought his speech sounded
a tad worse.
Then came day 5... Ryan woke up in the BEST mood and had the
sweetest temperament all day - no roller coaster fluctuations. Was
he still a 2 yr old little boy who can be snotty and doesn't
always pay attention, certainly, but it was different. The only
way to describe it is that there was a level of
resistance that was gone. Ryan is an easy going kid, but more and
more lately we've been met with resistance to any and everything.
It finally seemed as if he was...dare I say it...a normal 2 yr
old? Day 6 - same thing. Again, there was a different kind of
peace/calmness in him. My husband Paul was upstairs w/Ryan looking
down at me and Paul said "isn't mommy pretty, Ryan?" and Ryan said
"Mommy, you are pretty." And...he used the T!!!! He's never been
able to say that letter before. Also, we noticed he was singing
all day, humming, and chatting more than normal. Finally, we
started having hope that maybe it was the NV? I increased his
dosage to a full scoop and he went downhill again for another 3-4
days before he leveled out again. We believe his body was
purging/detoxing something.
WHAT IMPROVEMENTS WE'RE SEEING:
1. Demeaner: This is where we've seen the most significant
improvement. The sweet part of Ryan is so very sweet, but always
seems to be overpowered by this massive defiant side. It seemed
consequences (time-out, taking something away even a spanking
every now and then) were no deterrant. He simply was going to do
what he wanted to do regardless. Since he's my first child, I
didn't know if it was terrible 2s or what. However, after seeing
him have such wonderful days lately, I see it was something more.
Again, only way to say it is that the resistance is gone. He seems
so much happier, compliant and go-with-the-flow. 2. Verbal
Complexity: Seeing positive things here too. For instance, instead
of saying he wants to go to the bike shop with his daddy by saying
"me go" or "me go with daddy." He says "I want to go to the bike
store with daddy. Daddy, don't go yet, wait on me." - WHAT? This
is happening in all aspects of his speech - even pretend play.
He's also mimicking me more and more.
3. Articulation: This hasn't surged a ton, but has definitely
improved. He is able to say more sounds more frequently. "T" for
the first time, "Ns" are 80% there. I even hear him focusing on
ending words correctly instead of leaving off the last consenant.
My in-laws heard him talking on the phone and were blown away by
the clarity (let's be clear, there is still not optimal clarity,
but much improved).
4. Focus: Stronger! This morning he played alone for 1 hour. That
is not common. He did a few puzzles and I noticed it wasn't the
usual trial and error to find the right location for each piece.
He was actually looking at the image on each puzzle piece and
trying to match it. Haven't seen that before. I never thought of
him as unfocused, but I see a difference.
5. Fine/Gross Motor: Not sure I see anything different here. This
is hard b/c he's only 2, but we'll see. He did learn how to cut
with scissors, but not sure if it was naturally learned or due to
NV.
6. Social: Ryan is very social and likes to be the center of
attention, but mostly w/adults. He attends preschool 2x/wk (2.5hr
classes) w/100% typical kids and LOVES it but when it comes to
classroom setting, his teachers say he still parallel plays and
doesn't initiate w/the other kids. I know Ry well enough to know
it's not b/c he doesn't want to play and talk with the other kids,
it's because he can't...he can't talk to them and knows he doesn't
have anything to say. So...he'll walk up, hand them something and
walk away. (it's quite heartbreaking actually). However, we're
seeing a big difference here. At church daycare this weekend,
instead of running straight to the teacher for attention, he
walked over to a kid building a block tower and said "WOW! That is
really big!" Also, there was a little girl fussing and he walked
up to her and said "it be okay" and patted her on the shoulder. He
is walking up to people and saying hi and asking their names. He's
talking about the DETAILS of his day more than just answering
questions with yes/no. Maybe it's a confidence? Who knows.
7. Sensory: We are seeing no change in his suspected sensory
issues. But I'm hoping with time this changes.
WHAT'S OUR PROMPT THERAPIST SAYING:
Overall very impressed. She also mentioned less resistance in
demeanor and in his jaw. He's making sounds easier and things seem
to be flowing differently/better. She said his focus was
significantly better and she's not having to PROMPT as much as she
was a week ago. She's thrilled.
HOW IS HE TAKING IT:
We mix the vanilla w/Bolthouse Farms juice smoothies. If you don't
have time to make your own smoothies, I'd reco purchasing these.
They come in a TON of flavors & Ryan's able to take a half scoop
in one drink (2x/day). You can find them next to the milk cases at
Wal-Mart, or at Kroger's in the produce section next to the bagged
lettuce/specialty dressings - same for Whole Foods.
Overall, my skeptical husband and I are convinced that most of
these surges are due to the NV. Sometimes we can't pinpoint what's
different about Ryan, but something is...something there. We had
him tested with a DAN doc the week before we started NV to better
understand what is/is not working in his gut/system, but won't get
the results back until April. We're hoping when we meet with DAN
in April we'll get some insight into what exactly the Nutriveda is
helping regulate in Ryan.
Hopeful and excited! I have video of him talking from the week
before we started NV and will take more this week. As soon as I
get it posted I'll let you all know.
Sharon |
|
|
What's in NutriiVeda?
click here... |
|
First few days on Nutriiveda for autistic grandson
Day 3 on Nutriveda
We only started our grandson on Nutriveda this past Saturday with
1/2 a scoop and since he seemed to be fine with it we bumped him
up to a full scoop on Sunday and today. I could not wait to send
this email to the group because I could hardly contain my
excitement. Our 3 1/2 year old grandson was diagnosed with Autism
and Apraxia when he was just 18 months old. He is currently non
verbal and has received just about every therapy you could name
over the last year with very small amounts of slow and steady
improvement. I would categorize him unfortunately as a non
responder until Nutriveda came into our lives.
Although we haven't heard any new sounds or words yet his sense of
awareness, cognition and disposition is undeniably greatly
improved in just a few days. Just today he started playing with
toys he has never touched before, eye contact is great and he has
started to imitate things in his cartoons. I am keeping my fingers
crossed and praying this is going to be a big WOW for us since we
have yet to find anything to date to give us the feeling that we
might be on the right track. I am so grateful to this group and I
promise to continue to keep everyone up dated on our journey.
Day 5 on Nutriveda
WOW my daughter and I could hardly believe what we witnessed
today. My grandson for the first time ever was able to steer his
bike for approximately 2 city blocks. He just started to pedal
ever so slowly about a week or so ago and we were so happy with
that and figured the steering may not come for many months if at
all.....but today he suddenly started to steer the bike away from
the grassy edges of the path and kept the bike going straight.
Thank GOD my daughter had her flip video camera with her so she
video taped 3 minutes of this amazing bike ride. Thank you
everyone for sharing your experiences with Nutriveda and if there
is one think I am sure of now is NEVER GIVE UP HOPE.
Denise |
|
Introducing my son Matt and an update/report on Nutriiveda
Hi everyone,
I've not visited the list for a while. I started my son (and my
mother) on Nutriieveda four days ago. I spoke to Lisa last night
and promised her that I would report on Matt's progress.
First, let me introduce you all to my son. My son is currently 9
years old. He was born with a heart defect for which he had
surgery when he was 4 months old. He has a laundry list of
challenges - but one of his major stumbling block has been his
global apraxia - which diagnosis he received at 2 years old.
In searching for answers to that piece of my son's puzzle, I found
this group. My son responded well to the fish oil - although not
as some of the kids did. Perhaps his brain injury slow down his
surges. But any positive result was incredible to see.
When I spoke to Lisa last night, we had not yet seen any changes
in Matt, although he did like his chocolate shakes (LOL - he can't
believe we are giving him a dessert with breakfast).
This morning my son was spinning/twirling in the living room while
his breakfast was being prepared. Spinning is a normal activity
for my son. He has sensory issues - and something about spinning
calms him down. At one point, one of his OTs let him spin for as
long as he wanted to (usually we all limit it - as he is tuning
out the world while spinning). He spun for 15 minutes straight
without a pause.
When he finished she asked him how he felt. He grinned and said
good.
This morning as he sat at the table he told my husband that he was
dizzy.
DIZZY!!!
My son has NEVER been dizzy.
This may not seem big to most people, but it is incredible to us.
We are using 2 scoops in a morning shake (he has been drinking
part of it for breakfast and the rest later in the day). The first
few days he didn't finish his shake until bedtime. Both mornings
following he woke up having soaked his bed. So we are now making
sure that he finishes his shake by the afternoon. This morning he
once again woke up dry. Sleeping through the night dry is a work
in progress for my son.
To reduce the problem with the extra liquids in Matt's diet, Lisa
recommended also trying it in yogurt or pudding - which we'll try
- although Matt might miss his breakfast dessert!
I'll keep everyone posted on Matt's progress.
Oh! And the reason I'm having my mother use it also is that I had
planned to try it with my son so I could have a gauge of how it
was affecting my body. Unfortunately I am allergic to dairy and
the product has whey in it. Therefore my mother is using it and
keeping me informed as to how it is making her feel. So far, for
her, it has been a great meal replacement. I've asked her to pay
attention to any affects on attention, focus, concentration, etc.
She'll let me know if she sees any improvement. While she is more
than happy to experiment on herself to help her grandson, she
wouldn't mind seeing some positive results for herself as well!
Thanks for reading.
Lori Pyne
(Mom of Matt) |
|
Nutriiveda Month 2 week 1
I thought Nazurah has no new surges but she has subtle changes
that I dont see until the new school term starts last week. Her
teacher feedbacked to me that Nazurah couldnt sequence her ABC
last term but now she can! She also "followed frontal reaching
very well. She followed what she should write from the board to
her worksheets."
http://www.ourwaveriding.blogspot.com/ |
|
Our Nutriiveda experience, so far!
Dianne
I am so happy to hear about your experience!
I am also on the GFCF group with you and have been thinking about
you and your son! My son has been dx with Apraxia and PDD-NOS and
we are also seeing amazing gains with NV.
Anna
In response to:
My son has been dx with Apraxia and PDD-NOS and we are also seeing
amazing gains with NV.
Hello all! We received our canisters of chocolate NV on Monday and
began that afternoon! My 5 yr old son Liam and I are both using
it. I've started Liam on only 1 scoop per day, because I'm having
a horrible time getting it in him! I don't think he objects to the
taste as much as texture??? We know he doesn't like milk shakes or
smoothies of any kind, so we're feeling kind of limited. Hubbie is
picking up some coconut milk yogurt from Whole Foods on his way
home, so fingers crossed that will work and we can up his dosage
to 2 scoops soon. For myself, I started with 2 scoops and then
upped it to 4 today.
First, because I haven't posted much and you don't know much about
Liam - a brief history. Liam was diagnosed with multiple protein
intolerance as a newborn and cannot tolerate casein or soy. He has
a history of sinus, ear, and respiratory infections and is small
for his age. He was diagnosed with verbal
apraxia at 22 mos. We discovered Lisa's book soon afterward and
started Pro-EFA & EPA, experiencing nice surges as we increased
it. Over the past few years, Liam has received additional
diagnoses of high functioning autism/PDD-NOS, SPD, CAPD - well,
you get the idea - he's a real head-scratcher! He's hyperlexic, so
the big difference between his verbal and nonverbal/performan ce
skills make him
difficult to evaluate, I'm told. Anyway, he's "apraxic from head
to toe" (per one of his SLPs), mildly sensory-seeking, and has the
expressive and receptive language skills of a <3 yr old, while
able to do complex addition and substraction and read at a second
grade level.
Changes in Liam so far: Liam is a much happier child, with much
more energy. His attention has improved - he seems more "on."
Instead of wanting TV all day, he hasn't even asked for it
yesterday or today. Instead, he's reading and wants to share the
books with the rest of us. He is intiating play with us more,
actually creating his own silly games (apparently, they've been
imitating trains in preschool, which is thinks is hilarious, so he
runs around the house going "chuga chuga choo choo!" and then came
to me with a variation: "Mommy, when I say chuga chuga, you say
moo moo! Ok, ready? Ok, go!" - he has never done this before). He
didn't cry about going to preschool yesterday or today - this is a
battle we usually endure every morning (he'd even get the calendar
and try to convince me that it's the weekend! lol). As I'm typing
this, he has come up to me twice and physically moved my face so I
have to look at him while he tells me about something.
Definitely more engaged. He's considerably less frustrated and
less married to routine. We haven't noticed any change in
articulation yet, but he's requiring less cuing to answer WH
questions. After preschool yesterday and today, two different
therapists noted that he was very engaged and followed directions
well (was the only one in his group who followed instructions on
an art project without help). They don't yet know that we're doing
anything different. Liam was still happy and energetic after his
mornings at preschool, which is new. Liam is kind of hyper since
beginning NV, which under ordinary circumstances I might consider
to be a bad thing, but if he's feeling better and more energetic,
who
can blame him for wanting to climb and jump all over everything?!
!! :) Oh - and he is drinking a lot more. This might seem like a
little, unimportant thing, but we usually have to bribe him to get
him to finish even one cup of juice at a meal - last night he had
2 1/2! Good hydration makes us happy!
I'm also feeling much, much more energy. I've already cut my
morning coffee from two mugs to one - just don't want it. I still
have energy at the end of the day, and yet I'm sleeping very well.
My head feels clearer and I just plain feel better. I'm 46 (my
oldest child is in grad school and my youngest is 3 - yes, I'm
crazy) and overweight and had given up on being able to lose my
extra weight, but this week I've already lost 4 lbs. It's all
water - my ankles are no longer swollen and my feet don't hurt at
the end of the day. I was underweight - a teeny size zero - until
my mid-thirties, and then gained 30 lbs., followed by 30+ more
after Liam was born, and doctors haven't been able to tell me why,
and diet and exercise have not helped, so I'm a great candidate, I
think, for this product. If it continues to help me with my health
and weight woes, it is indeed miraculous!
For those who are doing biomed/DAN protocol for their kids - if it
helps at all to know - we started seeing a DAN doc last October.
Of course we were already GFCFSF because of Liam's problems, and
we had already added fish oils and digestive enzymes with great
results. We added Vitaspectrum multivitamins, at our DAN's advice,
and increased his calcium and magnesium (because he can't have
milk products) and vitamin D (blood test showed it was very low,
by even mainstream standards, as is common in my family), and
added L-Theanine (which we were happy to see is included in NV).
Since beginning NV, we've stopped the multivitamins and
L-Theanine, but kept the other stuff.
Sorry that this ended up being so long! Hope it helps.
Dianne |
|
|
|
Nutriiveda: We all are wowed by it.
Lisa, I totally forgot about the "humor" part. Thanks for bringing
this up. Varun loves to watch Wiggles. Of late he has been really
"enjoying" watching their videaos. I did not realise till
yesterday evening - he was involved with the videos - laughing out
loud when he saw some funny movements!!! IT took me a second to
realise that he was actually "into" the video. This is huge for
us. Previously he used to sit watch / rewind/ fastforward
etc...but there was no immotions to it [hope you can get my point
- short of words], but now he is immitating their movements and
laughing out-loud to some funny scenes!!!
Remember how i told you how I had increased it to 3 scoops for
him. I generally give one scoop with his breakfast. Then 2 scoops
after he comes home from school or sometimes during luch. We got
all positive feedbacks/reports from school especially more when he
was in 3 scoops. Yesterday i did not give him the 1 scoop with his
breakfast[we were running late...so couldn't squeeze the 1 scoop].
When I picked him up, his teacher said he was all-over the place!!
she told me she felt she had a different student in her
classroom!!! How bizarre is that???? I am really puzzled and
amazed how quickly we see the change with or without the
nutriiveda. You know how I have been trying out various combos.
Now
I am just going to stop experimenting...because we have seen
really more improvements ,involvement and awareness with the
nutriveda. We are into 3 scoops from now on.
But hats-off to you to get us all rolling and finding the
connection to nutriiveda and our kids.
Waiting to hear more improvements from all our kids.
sowmya
|
|
Do any of you use Nutriiveda for your little ones (under
3)?
Hello Andrea,
Our 24 month old has been on NV for just over a week now. We have
seen some tremendous increases in his speech. He is attempting
many more words and is now "singing" along to some songs. I was
very worried about trying this with my son at first as well. I did
have it approved by his Pediatrician and plan to take it to his
Pediatric Neurologist on March 1st. I do have my degree in science
and have asked many other scientists where I work what their
thoughts were about the product. No one thought there would be any
problems. I also tried the product before I gave it to my son. I
started him with 1/3 of a scoop twice a day for a few days and
then increased to 1/2 a scoop twice a day. I am thinking about
waiting another week and then stopping the NV to see if there is
any regression. Again, our son's only additional supplements are
the ProEPA and ProEFA. I will keep you posted on any additional
improvements!
Katie
25month old son on NutriiVeda update
Hello Everyone,
I wanted to give you all an update on my 25 month old son
Diagnosed with CAS. My son started on the NN fish oils when he was
20 months old with a small surge in soft vowel production. (He
previously had no words and made very few sound other than
grunting and pointing.) He also started Speech therapy with a
private speech therapist once a week at that time (because EI did
not have a speech therapist available and still doesn't.) He began
using "B," "M," and "P" consonants with soft vowels at around
23months but he had no words and was not mimicking any sounds. At
24 months he did start to pick up some animal sound approximations
"ba and moo" and was able to say "moe" for more. We had his 6
month re-evaluation (through EI) in the middle of January. They
evaluated his expressive language to be at 12 months and increased
his therapy to twice a week. (He has no other delays.) He does
have some hypotonia in his lower lip and tongue.
After careful consideration and the "OK" from his pediatrician, I
started our 24 and ½ month old son on Nutriiveda on February 1st.
It has been two weeks and we have seen him go from 1-2 word
approximations to well over 50 word approximations! He will try to
mimic anything I ask him too. He even has some two word
approximations: "la oo" for love you! He can make all consonant
sounds now except for "j, t, d, and s." I did not tell his speech
therapist when I started him and she could not believe the
difference! She said he was mimicking and trying any word she
asked! I can now get him to mimic whole sentences: I will say one
word at a time and he will repeat it. He will say "I - wan - moe -
ruck - pees" for I want more truck please. He has many more
spontaneous approximations as well. He can even say some words
spontaneously and perfectly: "pop, happy, me, my, mama, baby, go,
up, yeah, wee, uh-oh" and I am sure there are a few more that I am
not thinking of right now. He will even
sing along with his new CD aimed at children with CAS "Drills on
Wheels!" So it has been about a month now since he was evaluated
to be 12 months expressively and I took him to Chicago to see a
Developmental Pediatrician (to get a formal diagnoses) on Friday.
There was a speech therapist, a developmental therapist, an
occupational therapist, a child psychiatrist, and the Pediatrician
in the
room for his evaluation. They determined that his expressive
speech is now at a 21 month level! That means he went from a 12
month level to a 21 month level in less than a month (and two
weeks on the Nutriiveda!) We were amazed and so was the group that
evaluated him! I did bring a label and some of our group's
information to let them know about the Nutriiveda, but they pretty
much dismissed that it could be the Nutriiveda. They told us to
keep doing "whatever" we were doing. I believe differently of
course!
I can't say that there have been many other noticeable changes in
my son, but he has never had any behavioral problems and he has
always been very social. I do think he focuses a little better
during his speech therapy sessions but other than that, I haven't
noticed any other changes. (As if the speech wasn't enough!)
So, thank you Lisa for bringing this wonderful product to our
group and I hope that all of you see as many great changes in your
children as we have seen in the last few weeks!
Sincerely,
Katie |
|
OMG
well she started Fed. 3rd we did 1 whole scoop for 2 days then I
noticed she was a bit hyper so I reduced it to 1/2 in the morning
and 1/2 in the even after dinner. So far she has been very social
lots of spontaneous speech, I noticed she is more alert and aware
of whats going on my baby has never asked questions before, the
other day she said "mommy whats that"? Just last night she said
"I'm hungry" I was so surprised I asked her what she said and she
said" I'M HUNGRY" lol that made me so so happy! That's not even
half Lisa I think she's really excited and she knows something
wonderful is happening to because she just so happy now and full
of energy she just wants to learn as much as possible she comes
and gets me or her dad and says 'sit in car read book ok'! LOL
I haven't started a journal yet but I will!
Ty |
|
Jack's update
I have great news to share, it is finally our turn to report a
surge! It was just last week that I posted what a bad week it had
been. Jack seemed a little out of it and was making no
vocalization attempts. Wow, what a difference a week makes! It has
been 5 days on the right oil (EPA and EFA) and 5 days
on
Nutriveda. JAck's PROMPT specialist came to my home for a session
today. As usual they went to the basement to play. Trish came
upstairs and said "Anni, you have to see this!" So I went
downstairs and Trish started playing an animal game with Jack. She
was asking him to say elephant, tiger, giraffe etc and he was
attemting to say them all! It didn't sound exactly like the word,
but it was getting close!! Trish told me that this was a jump. The
last time she saw him she was having to prompt for sounds where
the lips come together. He was doing that all by himself today, no
prompting! He used to never even attempt a difficult word, he'd
just look away if you asked him! Also, there is more engaement,
it's hard to explain because it is subtle. As I said, it has only
been 5 days. I am sure we are in for more improvement.
I will keep posting his progress. We are starting the SCD diet on
Sunday. GFCF didn't work for us. My son has horrible digestive
issues. We need to get his bowels under control before we do HBOT.
I am going to keep him on the oils and NV. For those who are also
interested in SCD and HBOT, you may want to follow our progress.
Just a note, SCD diet is not for everyone. It is a very strict
diet and I am working closely with our DAN Doc on this one.
I also want to thank Lisa, I truely cannot express how thankful I
am for all your contributions. I would still be lost and full of
anxiety. You are helping us all through this confusing puzzle. I
really felt hopeless before. Now I feel as if we are making major
headway. Thank you, thank you, thank you!
PS Lisa, sorry my phone did die while we were talking!
Anni |
|
|
|
Hello,
I have been wanting to send along what our findings have been on
NV. Matthew (9) started NV about 3.5 weeks ago and I have been
having a hard time putting my finger on what I have been seeing.
Let me start by saying that Matthew is very verbal. I think that
his intelligibility has increased but I am with him all the time
so I am not the best judge. However I have noticed that he is
combining more words and phrases. He seems to be more even
tempered. His complexion has been healthier looking too.
Unfortunately here in Maryland we are going on day 12 of no
school, so I haven't had any input from his team. And even being
off with no schedule he seems to be doing great, me on the other
hand, I am going crazy!
Just to comment on how he does drinking it:
We go for chocolate in this family. At first I had to sit there
with him to make sure he would drink it. I had to bribe him at
times to finish. I bought a cool looking cup with a neat straw to
help make it seem cooler:-) Now he drinks it down twice a day w/o
even blinking an eye. I use pre-made non-fat
chocolate milk 4oz and 4oz of non-fat milk and two scoops. I think
it taste pretty good.. My feeling is that Matthew must feel good
drinking this otherwise my strong willed boy would be boycotting
this?
I look forward to one day getting back to school and hearing what
Matthew's team might be seeing. Again, I can't put my finger on it
but something is happening. *Barbara I look forward to seeing
what you and Rebecca also think.
Alyssa |
|
|
|
|
|
Our Nutriiveda experience so far
Our daughter has been on Nutriiveda now for about 10 days. She is
10 years old and reminds me a lot of Melanie when I read Melanie's
blog.
Since starting Nutriiveda I can report the following but I do want
to note that the day we started she got a cold that has been going
through our family and still has cold symptoms to date:
After 24 hours of being on a full dose for her age we found her to
be more chatty but also more hyper. The second day she went to the
kitchen and spontaneously said (eat). She also grabbed my face
that day to look into my eyes and tried to say something to me.
She was babbling more and tyring to say more. During these first
few days she was acting up at school though.
By day 5 she was behaviourally better at school and started to put
the front part of a word in. For example many times she says (ack)
for back or (ome) for home but now she started to say the full
word. On the 6th day she repeated the word yes and spontaneously
said hello (she always says hi and not hello) . She was constantly
laughing at shows that day and paying attention to them. She also
tried to trick my husband. He was taking her to brush her teeth in
the washroom. She then stepped behind him and waited for him to go
into the washroom and then took off on him after he had gone in.
She did not follow him in. The school though reported a difficult
day that day. She kept putting her head down and not wanting to
work. Not sure if it was the cold or Nutriiveda but at home she
was ok.
On day 7 she said her name in full (Nicole). She usually says
(cole). By day 9 my husband and I noticed her face was more
expressive. She also tried to say her two word combinations more
and tried real
hard to put three words together. Day 10 today- she was more
chatty this morning. I asked her a few questions and she answered
me with simple one word responses. Today she also went into the
kitchen and opened all the kitchen cupboard doors to see what is
inside. She was also listening well today.
She continues to have a cold so I wonder if Nutriiveda would work
even better with bigger surges when she gets well.
I only have her on Nutriiveda at this time as I wanted to make
sure nothing else interfered with it. I still though give her
seizure meds as she has absence seizures. I was giving her Krill
oil but stopped this. The ProEPA and ProEFA which I had used in
the past did help her initially but then it plateaued so I had
switched to Krill oil based on a doctor's suggestion to see if
this worked.
This last week we have seen some behaviour issues at school,
chewing her hands, licking ice on our rink (yuk). Could this is
oral exploration ? She is sleeping well but I noticed is taking
longer to fall asleep. Today I tried to get her to write her name
as her fine motor is weak. She held the pen okl and I let her try
to write her name on her own as I always hold her wrist for
strength and better control. She did do it but it was still big
and all over place but she still held onto the pen on her own the
whole time. Usually if I don't hold her wrist she will just drop
the pen.
I was wondering some things, 1) is Nutriiveda hard on the kidneys
or liver. I am just wondering as she is on a seizure med and so I
want to make sure there is no overload. 2) She also does not like
to drink a lot so is that ok when using Nutriiveda ? I have been
putting her Nutriiveda in apple sauce and she loves it. It tastes
just like chocolate pudding.
3) As well, can Nutriiveda cause yeast symptoms and or can it help
heal the gut.
I am just hoping that it is truly the Nutriiveda and hope that
things get better. To be honest I have questioned myself on if I
am seeing these things because I am just paying more attention. I
don't know but I will continue and see how things go. There seems
to be some good things going on here.
Thanks,
Demi |
|
|
Are you ready to see for yourself? |
|
|
 |
GOT QUESTIONS?
CALL (800) 814-0678
or email
info@pursuitofresearch.org
Home
|
Benefits |
Ingredients
|
Testimonials |
Theories
| Pursuit of
Research |
FAQs
|
Order
|
|